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Toward a Future with Effective Disease-Modifying Therapies for Huntington’s Disease
NEWS PORTAL
Find information about the latest news and updated events in the HD community, medical research and multimedia.
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Moving Forward, a project made by the European Huntington Association

Everything about HD

We have compiled reliable information to give you an overview of Huntington’s disease. You will find interesting, clear, and didactic links to articles, FAQ sheets, videos and audio files about the history, basics, and symptoms of HD. We believe that the better you understand HD, the better prepared you will be to deal with this diagnosis.

Research

We have compiled information about past, ongoing and future HD clinical trials and studies. You will also find didactic contents about the basics of clinical trials and drug discovery pipeline. We believe that the more knowledgeable you are about the research process, the more proactive you will be in the collective effort to find effective disease-modifying treatments for HD.

Support

We have compiled different sorts of information (articles, videos, podcast, online forum) to help HD families adjust to this diagnosis and get to know the HD global community. You will find valuable resources that provide psychological support, as well as practical tips to better cope with HD challenges. We believe that the more tools you have to help you face HD, the better quality of life and well-being you will achieve.

Moving Forward travels to the Balearic Islands! We met up with the Balearic HD Association

As part of a business meeting planned between the Moving Forward Project team and the European Huntington’s Disease Association (EHA) for November, on Thursday 25th the Moving Forward team met face-to-face with members of the Balearic Huntington’s Disease Association team

Read the full article here

Moving Forward in the November EHDN Newsletter

In the section “News in Brief” (p. 19), we had the chance to present the goals of the project, some of our latest achievements and the main actions we are currently working on.

Read the full article here

Survey about the Perceptions and Experiences of Research Participation among Persons at Risk and Persons with Premanifest HD

Moving Forward starts its activity in Spain, and we need you! We have created an online survey to find out the needs, concerns and desires of the Spanish community regarding their participation in research.

Read the full article here