Moving Forward, a project made by the European Huntington Association

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How to Navigate the Website:

Everything about HD

We have compiled reliable information to give you an overview of Huntington’s disease. You will find interesting, clear, and didactic links to articles, FAQ sheets, videos and audio files about the history, basics, and symptoms of HD. We believe that the better you understand HD, the better prepared you will be to deal with this diagnosis.

Research

We have compiled information about past, ongoing and future HD clinical trials and studies. You will also find didactic contents about the basics of clinical trials and drug discovery pipeline. We believe that the more knowledgeable you are about the research process, the more proactive you will be in the collective effort to find effective disease-modifying treatments for HD.

Support

We have compiled different sorts of information (articles, videos, podcast, online forum) to help HD families adjust to this diagnosis and get to know the HD global community. You will find valuable resources that provide psychological support, as well as practical tips to better cope with HD challenges. We believe that the more tools you have to help you face HD, the better quality of life and well-being you will achieve.

Moving Forward at the 26th Congress of the Polish Huntington Association

– May 17th, 2022

In April 2022, the Moving Forward team was invited by Danuta Lis, the President of the Polish Huntington Association, to present the project to the Polish HD community at the 26th Congress of the Polish Huntington Association/ Polskie Stowarzyszenie Choroby Huntingtona. 

Read the full article here

Participate in our Forum!

– May 6th, 2022

📣 Your voice can make a difference in the HD community!
The Moving Forward team has created a Forum, an online platform with several interesting topics about Huntington’s Disease.
 
Visitors will be able to ask questions, share experiences and connect with others:
  • This is your moment to speak and be heard.
  • This is your moment to learn from others and benefit from their experience.
  • This is the moment to use your voice!
 
Please share your thoughts, experiences & comments about this and other HD topics.
 

Another Vibrant Possibility for Huntington’s Disease Treatment

– March 17th, 2022

Novartis Pharmaceuticals is recruiting participants for their phase IIb clinical trial called VIBRANT-HD. This study will investigate the huntingtin lowering drug Branaplam, which was originally developed for Spinal Muscular Atrophy, a devastating paediatric genetic disease.

Novartis will test Branaplam in patients with early manifest HD to check the safety of the drug in HD and learn what is the right dose to lower huntingtin, the harmful protein.

Read the full article here