Moving Forward, a project made by the European Huntington Association

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What people say about us

« Fabulous Project »
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« Very important project. You are doing your job very professionally, supporting and connecting people with HD in Europe, working together with researchers, neurologists, geneticists and other healthcare professionals, sharing information with HD families. »
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« Excellent initiative from the European Huntington Association, with all kinds of information and contents »
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« I had the pleasure of participating in one of the most spectacular HD events of my life thanks to the European Huntington Association »
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Everything about HD

We have compiled reliable information to give you an overview of Huntington’s disease. You will find interesting, clear, and didactic links to articles, FAQ sheets, videos and audio files about the history, basics, and symptoms of HD. We believe that the better you understand HD, the better prepared you will be to deal with this diagnosis.

Research

We have compiled information about past, ongoing and future HD clinical trials and studies. You will also find didactic contents about the basics of clinical trials and drug discovery pipeline. We believe that the more knowledgeable you are about the research process, the more proactive you will be in the collective effort to find effective disease-modifying treatments for HD.

Support

We have compiled different sorts of information (articles, videos, podcast, online forum) to help HD families adjust to this diagnosis and get to know the HD global community. You will find valuable resources that provide psychological support, as well as practical tips to better cope with HD challenges. We believe that the more tools you have to help you face HD, the better quality of life and well-being you will achieve.

WHY SHOULD YOU JOIN US AT HD CONFERENCES?

– June 21th, 2022

After a (too long) pause due to the pandemic, the HD community is excited to return to the normal pace of global conferences dedicated to Huntington’s Disease.

The European Huntington’s Disease Network is preparing the last details of the first in person meeting post coronavirus shutdown. You still have about one month left to register for the EHDN2022 Plenary Meeting that will take place in Bologna – Italy, from the 16th to 18th September 2022.

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Keep Hope, Enjoy Life to the Fullest and Fight Your Fears

– June 7th, 2022

Interview with the Founder of the Project “Explore for Huntington”, the French Traveller Dimitri Poffé.

The HD community shows a unique solidarity and tons of inspiration when sharing their life stories. Dimitri Poffé is one of those people who stimulates  the HD community. About a year ago, Dimitri started the project “Explore for Huntington”, which got him travelling by bike all over Latin America to raise awareness about Huntington’s disease, to meet HD families and learn about their stories.

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First Moving Forward National Meeting in Spain: “The Uncertainty Of Waiting”

– May 24th, 2022

On May 7th, the Moving Forward team has promoted for the first time in Spain a national meeting specifically directed to possible HD carriers and people with premanifest HD. For most participants, it was the first time ever attending an HD- related meeting.

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Participate in our Forum!

– May 6th, 2022

📣 Your voice can make a difference in the HD community!
The Moving Forward team has created a Forum, an online platform with several interesting topics about Huntington’s Disease.
 
Visitors will be able to ask questions, share experiences and connect with others:
  • This is your moment to speak and be heard.
  • This is your moment to learn from others and benefit from their experience.
  • This is the moment to use your voice!
 
Please share your thoughts, experiences & comments about this and other HD topics.