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The Moving Forward “Let Us Talk” work was among the top scoring presentations at the European Conference on Rare Diseases & Orphan Products
– July 18th, 2022
In a busy month of work dissemination, Filipa Júlio, from the Moving Forward team, attended the 11th European Conference on Rare Diseases & Orphan Products at the end of June.
This online event was joined by over 800 people from the rare diseases’ community across Europe and it was thought to be the perfect platform to showcase the Moving Forward work about “Let Us Talk: A Communication Skills Training Course for Healthcare Professionals working with Huntington’s Disease”
Moving Forward presents E-Poster at the Congress of the European Academy of Neurology
– July 18th, 2022
At the end of June, Astri Arnesen and Filipa Júlio, from the Moving Forward team, attended the 8th Congress of the European Academy of Neurology in Vienna, Austria.
The European Huntington Association had two presentations at the Congress: an oral communication about the Involvement of HD Families in Research by Astri Arnesen, and an e-poster presentation about the Factors Influencing Research Participation in Huntington’s Disease: Clues from Southern and Eastern Europe by Filipa Júlio.
MOVING FORWARD DOES “DE RONDE”
– July 16th, 2022
“De Ronde” is one of the names of the “Tour the Flanders”, a road cycling race held in Flanders – Belgium every year.
Earlier this month, Filipa Júlio, from the Moving Forward team, was invited by Bea De Schepper, Vice-President of the Huntington Liga, the Flemish HD Association, to visit the beautiful region of Flanders in Belgium and meet the different stakeholders and key organizations of the Flemish HD community
Participate in our Forum!
– May 6th, 2022
- This is your moment to speak and be heard.
- This is your moment to learn from others and benefit from their experience.
- This is the moment to use your voice!