The Moving Forward team has created this section to present some lifestyle tips that can be used by everyone in the HD community to promote their health-related quality of life. We believe this information is particularly relevant for HD families because:

  • Several studies have shown that HD is not only about genes, but environmental factors can influence HD onset and progression. However, the main conclusions and findings of these studies often fail to reach the ultimate target group – HD families
  • In the absence of an effective drug treatment that can stop or change disease progression, it is crucial to have validated and scientifically based alternative approaches to enhance the quality of life of those impacted by HD
  • Adopting new, healthier habits may protect you from (other) serious health problems and gives you more energy to experience life at its fullest!

This work was awarded the 2023 #RAREis Global Advocate Grant by Horizon Therapeutics

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