On Tuesday, May 5, a webinar was held about the testing process in Sweden. The webinar featured two young people who shared their experiences of undergoing testing, as well as a genetic counsellor who spoke about their work.

Twenty-one people had registered, and 17 people attended. Eighty percent of them were family members, and 32 percent were attending a “Huntington event” for the first time.

During the webinar, several questions were asked, and it was a rewarding hour with new insights, both from the genetic counsellor’s description of their work and from the personal stories shared.

The hope for this webinar was that people who are considering getting tested for Huntington’s Disease, or who simply wanted to learn more about the process, would receive information and feel less alone.