HD Research made simple to the Nordic HD Community

– Written by the Moving Forward team on 18th June 2024

Last week, the Moving Forward team organized the second edition of the popular webinar on research updates for the Nordic countries. Around 45 people attended the webinar to listen to what is happening in Sweden, Norway and Denmark regarding HD studies and trials.

The webinar was moderated by Julie Skarberg from Norway and Maria Linné from Sweden, both part of the Moving Forward team. The webinar started with their brief overview about the project and the actions being done in each country.

Then, it was time to listen to Åsa Petersén, from Sweden, a respected HD expert who is a Professor of Neuroscience and Consultant Psychiatrist in Lund. Åsa talked about some of the studies being held in Sweden and shared some information about a new study that will look at CAA interruptions and its importance for when you start developing symptoms of Huntington’s disease.

Lasse Pihlstrøm, a well-known HD Neurologist and Researcher at Oslo University Hospital, presented some data about the Enroll-HD study, the largest observational study ever conducted in HD, which is also being done in Norway. Lasse also talked about a study recently started at his centre which will test the impact of high doses of vitamin B3 on people affected by HD in Norway.

Lastly, Simon Mølgaard, the CEO of Teitur Trophics, a biotech company from Denmark, presented their work on a first-in-class disease-modifying peptide that targets several key pathologies in HD. The presentations were followed by a multilingual Q&A session, where all participants had the opportunity to ask questions and share their comments or doubts.


We would like to thank everyone who joined us in this webinar! A special thanks to Åsa, Lasse and Simon, for taking the time to present us what’s going on in HD research in the Nordic countries in a family-friendly language and for being available to answer to all the questions asked by the audience. 

The Moving Forward team thinks this is a great way to bring the HD community closer to research, overcome the language and geographical barriers that prevent people from getting proper information and to increase the knowledge of HD families about what’s going on in their country regarding HD studies and trials.

For those who were not able to attend the webinar, you can watch the webinar recording here: