“Uncomplicating HD Research”: Videos of the 2nd Moving Forward Meeting in Valencia
– Written by the Moving Forward Team on January 11th 2023
In November 2022, we have organized the 2nd Moving Forward meeting in Spain, together with AVAEH – Asociación Valenciana de Enfermedad de Huntington and IIS La Fe – Instituto de Investigación Sanitaria La Fe.. We were lucky to have with us several clinicians and researchers strongly committed to Huntington’s Disease, who work round the clock to find the best therapies to improve the quality of life of all those impacted by this disease.
The Scientific Director of IIS La Fe, Guillermo Sanz Santillana, the General Director of Pharmacy and Medical Devices of the Valencian Community, José Manuel Ventura Cerdá, and the President of the European Huntington Association, Astri Arnesen, opened the meeting. You can see the video of the meeting opening session here
Carmen Peiró, the HD neurologist of La Fe Hospital in Valencia, presented the scientific updates about the ongoing HD studies ands trials that were announced at the EHDN Conference in Bologna. You can see the video of her presentation here
We could not have a meeting about HD research without listening to the first-hand experiences of HD patients and families, so we were honoured to have three testimonies: Maria Jar, Ruth Gutierrez y Asunción Martínez shared their amazing personal stories related to HD. You can see the video with their inspiring stories here
In this meeting, we had the chance to visit four research stations. We were able to speak with the researchers in charge of the stations and record the information shared at each station.
Visit to the Worm Lab
With Ana Pilar Gómez, Andrea Carranza and Rafael Vázquez
Visit to the Genetic Station
With Chema Millán
Visit to the Biobank Station
With Raquel Amigo
Visit to the Enroll-HD Station
With Asunción Martínez, Francisco Castera, Selene Capodarca and Claudia Perandones
At the end of a busy morning, we presented the Moving Forward project in Spain and shared our future plans to answer to the specific needs of the Spanish community, such as the online, free of charge, psychological support service. You can check all the Moving Forward updates here
In the aftermath of this successful second face-to-face Moving Forward meeting, we can’t help but strongly encourage you to participate in the next one!