Raising Voices: An Online Session for Young People Caring for Parents with Neurodegenerative Diseases
– Written by the Moving Forward team on 12th March 2025
Early this month, the Moving Forward team organized an online session together with the Swedish HD Association, where we highlighted the challenges of growing up as a child of a parent with a neurodegenerative disease.
Three young adults – two women and one man – shared their personal stories of having a parent with Huntington’s disease or Alzheimer’s disease.
They talked about their experiences, challenges and what helped them cope and feel better along the way.
32 participants registered for this one-hour session, which brought together 22 participants. Most the attendees were young caregivers, who were guided through the session by Maria and Katarina from the Swedish Huntington Association.
The team sees this format as an important tool to bring young people together in a safe and anonymous place. We hope to organize more similar events in the future to continue to be able to offer support and information to the local HD community.
Thank you to everyone who participated!
