Navigating the Holiday Season: Online Session Tackles Challenges for Families Affected by Huntington's Disease in Norway
– Written by the Moving Forward team on December 11th 2024
On December 4th, the Moving Forward team , together with the Landsforeningen for Huntingtons sykdom hosted an online session for the Norwegian HD community. One of the key topics of interest identified in our survey was “How to live in an HD family.” Recognizing the importance of this subject, we decided to address it during the holiday season—a time that can often be particularly challenging for many families impacted by Huntington’s Disease.
Three people generously shared their personal stories about growing up or living in a family affected by Huntington’s disease, as well as their reflections on what Christmas has been like for them. Each speaker brought a unique perspective: growing up with a mother with HD and now having a brother with the disease; being the child of a mother with HD; being a spouse and caregiver of someone with HD.
Their stories were deeply moving and inspiring, shedding light on the challenges, resilience, and love that define life in HD families. Sharing such personal experiences is never easy, which is why we create a safe and supportive environment for these sessions—without recordings—so participants feel comfortable opening up.
Coming together to share stories means so much to the HD community. It helps combat feelings of isolation and fosters a sense of connection and mutual support. This session was our third online event featuring personal stories, and it’s clear how valuable these moments are for everyone involved. The opportunity to learn from each other, ask questions, and find strength in shared experiences is truly fantastic.
We extend our heartfelt thanks to the three speakers for their openess and generosity in sharing their stories and to the Norwegian HD community for coming together in such a powerful and emotional way.
Looking forward to more sessions in 2025!
