Here you can find a series of interviews in which Russian HD families share their experiences and feelings about being involved in HD research. This Moving Forward campaign tries to answer one of the needs we have identified in Russia – families impacted by HD report limited knowledge about research and say they want to know more about this topic. We hope that the “My HD Research Experience” campaign will enable you to learn more about the research process from the first-hand experiences of other HD family members and can be a useful online resource for the HD community. 

If you want to share your story about HD research participation, please contact Zaynab Umakhanova, the Moving Forward Project Coordinator in Russia.