30TH ANNIVERSARY
OF THE HD GENE DISCOVERY
30 years have passed since the HD gene discovery in March 1993. The European Huntington Association (EHA) acknowledges every single day the impact that the discovery of the mutated gene that causes Huntington’s Disease (HD) has had on the global HD community. At the same time, the EHA realizes that the younger generations from HD families are often unaware of the importance of this scientific breakthrough to so many aspects of their lives.
Therefore, the EHA / Moving Forward team is launching an online campaign with interviews to key HD family members and professionals who will share all the stories and details about this discovery.
Campaign video: 30th Anniversary of the HD Gene Discovery
– May 10th, 2022
This video explains what happened in Venezuela 30 years ago and how this still impacts us today. The video is in Spanish, with English subtitles, so that the Spanish-speaking community can learn about this fascinating topic without any language barriers.
An interview with Rob Haselberg
– June 2nd, 2022
Meet Rob Haselberg, a well-known member of the global HD community, sharing his thoughts about the impact of the HD gene discovery on many aspects of our lives. You can now listen to his knowledgeable and pragmatic inputs about this topic in this video interview.
The video is in English, with Spanish subtitles.
An interview with Saúl Martínez-Horta
– June 14th, 2022
Meet Saul Martinez Horta, neuropsychologist and researcher working in HD for more than 15 years, explaining what the 30th anniversary of the discovery of the HD gene means to him and the implications it has today.
Discover the interview made by the Moving Forward team.
The video is in Spanish, with English subtitles.
An interview with Bernhard Landwehrmeyer
– June 30th, 2022
Meet Bernhard Landwehrmeyer, the Founder of the European Huntington’s Disease Network (EHDN) and the Principal Investigator of the Enroll-HD study, sharing his view about the impact of the HD gene discovery on the HD clinical and research landscapes.
The video is in English, with Spanish subtitles.