A transformative encounter: three young people and a supportive community—that was our online session
– Written by the Moving Forward team on 4th December 2025
On 27 November, we held a new online session dedicated to sharing experiences and motivations around international events in the Huntington’s disease community. The event brought together 38 registered participants, of whom 23 connected live, not only from various Spanish provinces, but also from other countries such as Italy and Mexico.
Three young people, three perspectives, one need for the community
On this occasion, we had the participation of three young people who attended either the HDYO Congress or the EHA Conference in Bucharest, both held this year. Each of them shared their story, their reasons for participating in these events, and what it meant for them to meet other people living similar realities.
Spontaneously, Luis Aguilar, author of the book Chronicle of a Fortune Foretold, who was in the audience, also joined us and wanted to share his testimony. His contribution complemented these diverse and inspiring experiences, which were united by a common thread: the importance of feeling part of a global community.
When words are superfluous and a glance is enough
For an hour, we delved into the experiences of these three young participants. We discovered situations that were very different from each other, but with one thing in common: the profound impact of connecting with others, regardless of the language they speak.
Because in these encounters — whether at conferences or youth events — emotions travel faster than words.
Sometimes a glance, a gesture or a shared silence is enough to feel that someone understands exactly what you are going through. And that recognition, that real companionship, profoundly transforms the lives of those who attend, despite the concerns that come with participating in such an event for the first time, fear, uncertainty, lack of expectations, logistical difficulties, etc.
For those who have just received a diagnosis… and for those who have been on this journey for many years
Something we noticed during the session was that each person comes to these events from very different places:
– Some have just discovered that Huntington’s disease is part of their family.
– Others have been living with it for years through a loved one.
– Some come because they want to receive as much information as possible about HD, while others just want to accompany and help, for example, by acting as translators for their family members who were interested in attending and participating in the conference.
But regardless of where each person is on their journey, or the motivations that led them to attend, they all agree on one thing: these meetings always offer something very valuable, a unique experience that marks a before and after.
A unanimous conclusion
The phrase that best sums up the session could be this:
‘Don’t miss the opportunity to attend any of them.’
Because each event is an open door to learning, sharing, and finding strength and inspiration that only comes from feeling and realising that you are not alone, and feeling the support of a global community that understands what it means to live with Huntington’s disease.
👉 Stay up to date with our upcoming meetings through our social media and the Moving Forward website.
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👉 Share these spaces with others who may benefit from them: we never know whose life a single session could change.
Don’t miss out: we look forward to seeing you at our upcoming events!