Here you can share your thoughts, experiences, comments, and questions about all the practical matters that you must consider when you have Huntington’s Disease or you are a partner/carer of someone who has Huntington’s Disease – e.g., what were the biggest changes in your daily life to accommodate an HD diagnosis, what resources do you use to handle these issues, who and what helped you face these challenges, etc.


This is an online forum with some interesting topics about Huntington’s Disease. In this section, visitors will have the chance to ask questions, share experiences, interact with each other, etc. Here you will find a list of topics where you can add a comment or reply to others.
This is your moment to speak and be heard. Feel free to use your voice!
Privacy and Terms:
- A name and an email address are needed to participate in the forum: If you want to remain anonymous you can use a nickname. Your email is just a procedure, it will remain private and nobody else in the forum will be able to see it.
- Every comment, reply or new topic needs to be approved by a moderator. Your contribution will only be seen after it is approved. We kindly remind you that this is a safe and respectful space, so everyone needs to be careful with the words and messages dropped in the chat
- Any ads will be treated as spam and will be deleted during the moderation process.
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Practical Issues and HD (insurance, work/disability, driving, confidentiality issues, etc.)
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