Here you can share your thoughts, experiences, comments, and questions about being a partner of someone at risk or with an HD diagnosis – e.g., how your journey is together, what are the biggest challenges that you have to face, how do you provide support to your partner, etc.
This is an online forum with some interesting topics about Huntington’s Disease. In this section, visitors will have the chance to ask questions, share experiences, interact with each other, etc. Here you will find a list of topics where you can add a comment or reply to others.
This is your moment to speak and be heard. Feel free to use your voice!
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- Every comment, reply or new topic needs to be approved by a moderator. Your contribution will only be seen after it is approved. We kindly remind you that this is a safe and respectful space, so everyone needs to be careful with the words and messages dropped in the chat
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Partners of HD Affected Individuals
This is what Jose had to say about this topic in the Spanish version of this Forum:
I was a partner of a person affected by HD. Everyday life is complicated and, at the same time, educational. Why educational? Every day you must face new challenges, new ways of living. We are faced with the unknown and sometimes you handle it well and sometimes you don't know how to handle it. The main thing is to never give up and move forward with strength. Nothing and no one are going to solve our problems, so we must face them and go for it.
A hug for everyone
This is what Vlado had to say about this topic in the Slovakian version of this Forum:
Being the partner of a person with HD is a very painful thing. You see a loved one pass away in front of your eyes. But I'm still grateful for her smile and I enjoy her joy when she wins over me in board game. 🙂