Here you can share your thoughts, experiences, comments, and questions about different HD-related features and symptoms – e.g., meaning of CAG repeats, what are the most troublesome HD symptoms, tips to deal with HD symptoms, etc.
This is an online forum with some interesting topics about Huntington’s Disease. In this section, visitors will have the chance to ask questions, share experiences, interact with each other, etc. Here you will find a list of topics where you can add a comment or reply to others.
This is your moment to speak and be heard. Feel free to use your voice!
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HD Features and Symptoms
Hi I’m Dina, 58 presymptomstic (prodromal stage). My CAG repeat is 40 like my father. It’s a later onset in our family. One of my main struggles for a few years is my sleep. Getting to sleep and not feeling rested the next day. I feel I need more sleep time then the average person. I retired 3 years ago to concentrate on my health. Does anyone else have similar issues? And what advice can you relay?