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Being At Risk for H...
 
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Being At Risk for HD

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Filipa
Posts: 7
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(@filipa)
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Joined: 1 year ago

Here you can share your thoughts, experiences, comments, and questions about coping with being at risk for HD – e.g., what are the biggest challenges, how do you deal with the several uncertainties, who and what helped you handle this situation, etc.

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Zaynab
Posts: 27
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(@zaynab)
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Joined: 7 months ago

To be at risk for HD ...

in 1995-1998

no information about HD - only a couple of sentences describing HD as a severe progressive disease in medical encyclopedias , genetic testing labs only in Moscow  which was 2000 km away from my native city.

Describing my feelings then - it was an overwhelming fear and feeling of hopelessness and powerlessness... 

what I felt about it later though I have tested negative:

in 2006-2022

Sometimes I ask myself what would I feel and think if I tested positive these days... what I can say for sure - I wouldn't feel that fear and hopelessness now, because of the information we have and it is our power, as well as the Community we have - united, supportive and kind ❤️ 

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