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Author: Claudia

Posted on23. May 202324. May 2023

EHA met the Icelandic HD Community

by Claudia

The European Huntington Association met the Icelandic HD Community – and was really impressed – Written by the Moving Forward Team on May 22nd 2023 …

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Posted on19. May 202326. February 2024Ukategorisert

an expiration date

by Claudia

Chapter 8 The day they give me an expiration date Illustration by Paloma Agüera He arrived and the table was already set for two with…

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Posted on10. May 202326. February 2024Ukategorisert

I imagine him young and without HD

by Claudia

Chapter 7 I imagine him young and without HD Illustration by Paloma Agüera A recent winter sun, shy, dares to enter through the small holes…

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Posted on5. May 20235. May 2023

What Can I Do?

by Claudia

“What Can I Do?” the second informal meeting for people at-risk for HD and people with premanifest HD in Spain – Written by the Moving…

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Posted on26. April 202323. February 2024Ukategorisert

Disabled

by Claudia

Chapter 6 Disabled Illustration by Paloma Agüera The first time we went to see him we became stars for a day. Some of them sitting…

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Posted on11. April 202323. February 2024Ukategorisert

Órdago

by Claudia

Chapter 5 Órdago (all-or-nothing card bet) Illustration by Paloma Agüera Like every afternoon around the same time, he enters the Bar Cafeteria El Hórreo and…

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Posted on3. April 202323. February 2024Ukategorisert

Suppose

by Claudia

Chapter 4 Suppose Illustration by Paloma Agüera Years after that attempt, when I understood the magnitude of life itself and, therefore, of death, I picked…

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Posted on15. March 202315. March 2023

Enroll-HD: 10 Years Observing HD

by Claudia

Enroll-HD: 10 Years Observing HD – Written by the Moving Forward team on March 14th, 2023 Enroll-HD is the world’s largest observational study being conducted in…

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Posted on13. March 202323. February 2024Ukategorisert

The Retreat that was Not

by Claudia

Chapter 3 The Retreat that was Not Illustration by Paloma Agüera  And amidst that ecosystem of harmonious perfection, he ran off to commit suicide. And…

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Posted on10. March 202310. March 2023Ukategorisert

JOIN-HD: A platform for Juvenile HD

by Claudia

JOIN-HD: A platform for Juvenile HD – Written by the Moving Forward team on March 9th, 2023 JOIN-HD is a worldwide registry for families affected…

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