Being At Risk for HD - Forum https://ehamovingforward.org/community/main-forum/being-at-risk-for-hd/ Discussion Board en-GB Mon, 16 Mar 2026 08:22:20 +0000 wpForo 60 RE: Being At Risk for HD https://ehamovingforward.org/community/main-forum/being-at-risk-for-hd/#post-1612 Tue, 03 May 2022 12:02:43 +0000 To be at risk for HD ...

in 1995-1998

no information about HD - only a couple of sentences describing HD as a severe progressive disease in medical encyclopedias , genetic testing labs only in Moscow  which was 2000 km away from my native city.

Describing my feelings then - it was an overwhelming fear and feeling of hopelessness and powerlessness... 

what I felt about it later though I have tested negative:

in 2006-2022

Sometimes I ask myself what would I feel and think if I tested positive these days... what I can say for sure - I wouldn't feel that fear and hopelessness now, because of the information we have and it is our power, as well as the Community we have - united, supportive and kind ❤️ 

]]> Forum Zaynab https://ehamovingforward.org/community/main-forum/being-at-risk-for-hd/#post-1612 Being At Risk for HD https://ehamovingforward.org/community/main-forum/being-at-risk-for-hd/#post-1593 Thu, 28 Apr 2022 09:44:24 +0000 Here you can share your thoughts, experiences, comments, and questions about coping with being at risk for HD – e.g., what are the biggest challenges, how do you deal with the several uncertainties, who and what helped you handle this situation, etc.

]]> Forum Anonymous 125 https://ehamovingforward.org/community/main-forum/being-at-risk-for-hd/#post-1593