Moving Forward Updates Presented by Maria Linné at the Swedish National HD Meeting
– Written by the Moving Forward team on 7th October 2024
At the end of September, the Swedish HD Association organized its annual national meeting in Gothenburg, attracting over 60 healthcare professionals, researchers, and family members.
Attendees gathered at Dalheimers Hus to hear the latest updates on Huntington’s disease (HD) research and to learn about various initiatives and projects related to HD in Sweden.
Maria Linné presented the Moving Forward project, showcasing the activities done in Sweden. She emphasized key aspects of the project and highlighted initiatives developed in response to needs identified by the Swedish HD community in a survey conducted at the end of 2023.
Among the project’s primary initiatives were webinars focused on research updates for the Nordic countries and a social media campaign titled “Why Should You Care About HD Research?”.
These efforts aim to provide better education and support for younger generations from HD families, fostering a deeper connection to research and promoting awareness within the community.
